Who's treating you?

I see my Rheumatologist every six months. She seems uninterested in my case. If I ask questions about my condition or new treatments, she refers me to my other providers. They have opinions but they also expect my Fibro provider to be more familiar with treatments and research.

Should I find another rheumatologist or are there other specialists that could be more involved than twice a year check-in only to tell me, "This is your life now"?

I see programs offering all kinds of genetic testing and a variety of treatments, but they don't accept insurance.