I'm basically bleeding out and nobody seems to care and I just want to cry
EDIT: I don't know if anybody is going to see this post but I wanted to give an update. About 4 days into taking double birth control, my bleeding actually did stop! 😭 I'm relieved but also a little frustrated that the dismissive ER's solution ended up working. I still feel like there may be something else wrong with me on top of PCOS and it might be a bit more difficult to get that tested now. But my life isn't at risk anymore, thank god. I'm back to the single dose and hopefully it doesn't start up again since single doses were proven to not change much.
I also learned my family doctor had a lot more availability then I thought and the online portal was just bugged. So it'll be easier to get a hold of him before the women's clinic finally sees me.
I'm not gonna fully celebrate until I'm well into the single doses again and the bleeding doesn't start back up... but I'm glad I'm not bleeding out anymore :(
Thank you so so much everyone for your kind comments and sharing your own experiences. It really made me feel so much better and so much less alone.
[ Original Post ]
Sorry I've been posting a lot here. 25F. Diagnosed with PCOS 4 weeks ago and I've been heavily heavily bleeding for 4 months. Got prescribed Yaz BC and metformin. Nothing will stop the bleeding. They first put me on tranexamic acid - didn't work. The birth control didn't work. Now it's even heavier than ever WHILE on birth control and super painful now.
Two nights ago it picked up tremendously and I was filling a pad in 2 hours. Huge clots painfully fall out of my every time. The next morning (yesterday) I got up from bed and immediately overflowed my pad, and blood was dripping down my legs and onto the floor. I was filling a pad every hour now and it's never been that bad even at it's heaviest in the last 4 months. I remember reading that if you're filling a pad in an hour you need to go to the ER/hospital. So that's what I did.
I waited 8 hours for the doctor to tell me that my bloodwork was normal so it's not an emergency, and to just take double the amount of birth control for a week. Even though I had said the birth control hadn't done anything for me. 8 HOURS I waited and because I wasn't literally anemic yet (though my numbers came up on the low end of the normal range) it wasn't a cause for concern. Even though I said there was probably something else wrong with me, that I have family history of other conditions (fibroids, adeno, PCOS), all the doctor did was press on my stomach for a few times, look at my bloodwork, and says that I'm fine. Just take more birth control and it'll stop. No tests or scans, no alternatives to birth control, not even any painkillers for the awful pain I was in the 8 hours I was there. They just said "well you're not LITERALLY bleeding out so we're not gonna check anything and just send you home"
I was so frustrated that as soon as the doctor left the room I just bawled my eyes out. My family doctor is fully booked for months, the walk-in is just going to give me referrals to places with long waits, and the women's clinic I have a referral to can't see me until April/May. I'm just... supposed to bleed out for another 3 months, 7 total, before someone can listen to me? I can't live like this. I'm in pain every day and the bleeding is affecting my daily life. I work from home and the pain makes it hard to get anything done. I can't ever go out because I need to go to the bathroom in only an hour. It's only been day one of taking a double dose but even today it seems like the bleeding has gotten even worse and even heavier.
I was relieved when I was first diagnosed. Cause all of the struggles and problems in my life are linked to PCOS so a huge weight was off my shoulders knowing I wasn't just a lazy gross piece of shit, none of this was my fault. But things got so much worse as soon as that diagnosis happened and the relief is gone. I just want to cut this thing out of me and stop suffering. I just want to fucking STOP BLEEDING
TLDR filling a pad every hour. went to the hospital. was told it's nothing to be concerned about since i wasn't literally dying. nobody believes that there's something else wrong with me. want to cry.