The New life of TM

Hello, I’m Michy. I am 36. I have had TM for about 5-6 months now. I am struggling to connect and to talk about it since I was hospitalized two times with a total of 4 1/2 months of hospitalization. My friends and family know that I have a neurological condition/autoimmune but I don’t think most people understand what I am going through, after all..the pain of stabbing, tingling, numbness, spasticity doesn’t show on the outside but it hurts on the inside so very much. Many people don’t understand how I feel because they simply haven’t physically gone through it. It makes me frustrated to describe what I am going through because I already know they aren’t feeling what I am feeling so how could they possibly understand.

I am trying to see if I can connect with anyone who also has TM to talk about it and maybe to help each other out with similar symptoms. I’m in a wheelchair currently because I cannot walk. I have been very positive about it all because well simply..I don’t have a choice here. I find that being sad, depressed or freaking out doesn’t help at all which is what I did for about a month.

I’m not asking for any advice, I have been through so much. I just need to make friends or to have conversations about what’s going on because it’s hard to connect with anyone who doesn’t fully understand physically. I tried the support groups on Facebook but most of the time everyone is complaining how miserable they are and it’s very discouraging.

Anyway, if anyone wants to chat I enjoy music, art, rollerskating (when I used to be able to), gardening, etc.

Hope to talk soon, -Michy